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Case study: A light at the end of an exhausted tunnel

Supplier: Smart Tech
01 March, 2010

Smart Tech were contacted by a lady (JG) in Perth, whose son (MG) has Duchene’s Syndrome.

Duchene's Syndrome is a particularly horrible condition, which mainly affects children. Duchene's sufferers, who have differing levels of immobility, have a lot of pain, and require inordinate levels of care, which is usually provided (as in this case) by family members.

JG and her husband were exhausted, with him working long hours and her being the primary carer, while doing a double-degree in Forensics at University. At the same time, they were trying to provide as normal a life as possible for their son. JG was not getting as much support or information from the local Healthcare professionals as she needed.

JG contacted Smart Tech after she had found the company on the internet. After explaining what her son and her family was going through, Smart Tech arranged to provide a bed for them to trial for a little while. The bed proved to be beyond their hopes in improving all their lives on many levels. The bed was then left with the family, until such time as a benefactor, sponsor or subsidy could be found. The Lions Club in Perth took on this project and provided the funds.

JG wrote a letter to Smart Tech to say thank you and to provide some feedback on the bed.

"I thought I would give you an update on MG," she wrote. "The first night of sleeping on the new bed was the usual thing - 8 wake ups - but I think it was him getting used to the bed. The next night, he woke me up at midnight to do a substantial wee. The night after he woke me up at 10.30 to do the same, but apart from that, he was sleeping through.

"The night after he woke up 4 times. I got despondent, as he has a habit of sleeping for a few nights with any new therapy (I think it's the change that does it) but then he starts to get uncomfortable and wakes frequently again. But, after that one bad night, he has returned to sleeping through the entire night.

"So his sleeping pattern is as follows:

Monday - woke up 8 times
Tuesday - woke up once
Wednesday - woke up once
Thursday - woke up 4 times
Friday - woke up once
Saturday - woke up once

"He has not slept this well in his entire life, so I think it goes without saying that my husband and I are now your biggest fans.

"On Tuesday I am ringing the hospital to ask that they start the funding process, as I don't want to have to go back to sleepless nights - ever. I will send you another update next Sunday, and I will also let you know how the funding is going.
"I just can't believe what a huge difference this bed has made - for the first time in 10 years I walked around the house yesterday wondering why I felt so funny, and then I realised - it was the first time since I have had Mitchell that I did not feel totally and utterly exhausted.
"So thankyou, thankyou, thankyou to everyone that has made this wonderful bed a reality - I think this is the best thing since sliced bread. Our son is singing when he wakes up - the bags under our eyes are no longer the size of shopping trolleys, I'm no longer falling asleep at traffic lights, and I don't have to worry about my husband being so tired he will fall off a roof at work.

"Mick and I were so tired before the trial that we had started to make enquiries about having MG put into nursing care every three months for a week, so we could catch up on our sleep - even though the idea of it tore our heart out, we knew that we could no longer survive while getting 6 hours of broken sleep a night.

"Thanks to the bed, we now don't have to choose between two awful situations, which is just one more thing we are indebted to your company for."